Friends of Cymru Sickle Cell & Thalassaemia – TSSW Case Study

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C3SC have recently been supporting Friends of Cymru Sickle Cell & Thalassaemia (FOCSCT) to recruit new trustees.

Sickle Cell disorders and Thalassaemia disorders are serious, inherited, life-long, life-threatening disorders for which there is no universal cure.

Friends of Cymru Sickle Cell & Thalassaemia is the only organisation in Wales founded specifically to support adults and children who live with either of the disorders and also to support their families and carers.

FOCSCT have been running for almost 22 years and are now a Community Interest Co-operative C.I.C.

Friends of Cymru Sickle Cell & Thalassaemia aim to:-

  • Raise awareness & funds
  • Amplify the voices of families
  • Advocacy, advice & research
  • Signpost people to appropriate services
  • Provide the best possible outcomes for individuals
  • Work holistically & collaboratively
  • Activities funded by grants

Faith Walker, Executive Director said: “Our members/beneficiaries report that they feel marginalised due to a lack of awareness of the impact these disorders have on them and their families. We have learnt that the majority of families live in and around Cardiff, Newport and Swansea, & living in severely financially constrained situations, and some are also asylum-seekers or refugees. Families affected by either Sickle Cell or Thalassaemia are in need of emotional, practical and financial support to navigate the myriad challenges presented by the disorder.”

On the support received by C3SC, Faith said: “Excellent service, very professional, informative, supportive and kind. I was introduce to new learning    which will greatly benefit our senior management team and beneficiaries. Thank you so much for your time and support and follow up calls.” 

To find out more about Friends of Cymru Sickle Cell & Thalassaemia, please visit: https://www.focsct.cymru/

If your group or organisation require support recruiting volunteers, please contact Cardiff Volunteer Centre on 07776 844 566 or [email protected]

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