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Research to hear the voices and experiences of older people with dementia, their families and carers

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Age Cymru is working with the Older People’s Commissioner for Wales on research to hear the voices and experiences of older people with dementia, their families and carers.

Do you know anyone who would be willing to speak about their day-to-day experiences of living with dementia, the impact it has on their lives and the support currently available to them? Age Cymru is looking to speak both to people living with dementia themselves and the people who care or support them. These conversations can be conducted separately or together.

The conversations will be conducted by the fully trained engagement team and will be extremely informal. Staff are alert to the sensitivity of the topics which might be covered and will take a flexible approach based upon a person’s situation. They are using a framework based on the ‘Talking Points: personal outcomes approach’ developed in Scotland, in which the participants guide the conversations wherever possible.

It is hoped that the conversations will take place between now and the end of September 2015, with a report to be produced by the end of the year.

The experiences gathered will help to shape public services and assist policy makers in taking the action needed to meet the needs of older people living with dementia in Wales and make our communities truly dementia supportive.

If you are able to help, please contact Kathy Lye at Age Cymru on kathy.lye@agecymru.org.uk or (029) 2043 1570. If you would like to discuss this research further or have any questions, please contact Graeme Francis, Project Manager, on (029) 2043 1547.

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